Operation Jack

Fighting autism, one mile at a time.

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Trick-Or-Treating Autism Style: BYOC!

October 31, 2013 by operationjack Leave a Comment

Tonight I was sitting on my front porch handing out candy to the trick-or-treaters stopping by the house while my wife Tiffany was out with Benjamin (our oldest) and Ava (our youngest). I was holding down the fort with Jack, our severely autistic 10-year-old. He was hanging out in the basement doing his thing — watching TV, playing on the computer, not knowing the difference between March 31 and October 31.

If you’ve never been here before, Jack is barely verbal and pretty much off in his own world. He has severe diet issues and we can’t take him trick-or-treating because he can’t eat the candy. He doesn’t understand why he can’t eat the candy, so it would be miserable for him to go out. He doesn’t really know or understand that it’s Halloween, so he doesn’t feel like he’s missing out on anything if he doesn’t go out. It’s sad for us as parents, but it’s in Jack’s best interests to be as happy as possible and going out and watching everybody else get to have candy would not make him happy.

So I was sitting there handing out candy and after about 20 minutes, he came up and wanted to sit on my lap. This was apotential issue on my hands because it wouldn’t have taken him long to see what was going on and he would have probably had a meltdown wanting some. But within a minute or so, Tiff randomly came back home and told me she had an idea — she would grab a bunch of organic lollipops that are dye-free that he can have and we’d go ahead to a few houses and give them to the adults to give to him on the sly.

We’re starting to learn more and more by the day that Jack understands a lot of what we’re saying. That doesn’t mean he’ll listen or obey, but we know he understands. Earlier this week, Tiff told him that he left the remote control to the DVD player up in Ava’s room and he went upstairs and got it! That might not seem like anything big for a 10-year-old, but for us, it was huge. That little stinker knows what we’re telling him!

The reason I’m telling you this is because when Tiff told him she was going to put him in a costume and take him trick or treating, he got super excited! So he became a skeleton, we shut off the porch light and house-to-house we went. Ben and Ava would go up first, get some candy, and Ava would explain to the adult about the lollipop. Everybody was very receptive and accommodating for this.

Our little skeleton!
Our little skeleton!

Ben ended up with 93 pieces of candy and Ava had 85. Jack had a rotation of about five little lollipops, but he didn’t know the difference. And he had FUN! It upsets us that he’s missing a lot of the things that typical kids get to experience during their childhoods, but tonight, he didn’t have to get the short end of the stick! He got to go trick-or-treating like every other kid and eat too much candy and get a little hyper. He had a blast, which is something he and every other kid deserves.

It was BYOC (bring your own candy) trick-or-treating, autism style! I thought it was a clever, last-minute idea. And I’m glad that finally, Jack got to have fun like all the other kids!

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Filed Under: Uncategorized

How's This For An Allergy List?

October 29, 2013 by operationjack 1 Comment

Good news and bad news can be all about perspective and when it comes to a glass half-empty vs. half-full challenge, we could definitely swing either way about the news we got about Jack yesterday.

Jack, in case you don’t know, is my severely autistic 10-year-old son. He’s the inspiration for this website and everything I do to fight autism (plug: About Operation Jack). I like to write about what he goes through to spread autism awareness, so people know what autism is really like. It’s not just about quirky kids who are good on the piano. It’s innocent kids trapped with wrecked minds and bodies. When I slow down and just gaze at him, that’s what I think about.

He has severe mental issues, which are obvious if you ever observe him or try (and fail) to communicate. But I’d argue that the bigger part of what he goes through are the problems with his leaky gut. It seems like every meal causes him pain. My wife Tiffany has done a lot of data collection over the years and we’ve had a pretty good idea of what he can and can’t eat. But yesterday we finally got test results that confirmed what he can’t eat. It’s a fairly lengthy list:

  • Red apples
  • Bananas
  • Blackberries
  • Blueberries
  • Casein
  • Cherries
  • Cocoa
  • Corn
  • Cranberries
  • Egg whites
  • Eggplant
  • Garlic
  • Red grapes
  • Milk
  • Onions
  • Peanuts
  • Red Peppers
  • Green peppers
  • Plums
  • White potatoes
  • Soy
  • Strawberries
  • Tomatoes
  • Watermelon
  • Wheat

On one hand, it’s tough to look at that list, because that’s a whole lot of things he can’t eat. It’s easy to feel sorry for him and all the things he’ll miss out on that we currently let him have. But this might be the map we need to finally right the ship. At one point, I texted Tiff about this and told her to try to focus on what he can eat, not what he can’t eat. At least we know.

And when we were putting him to bed last night, I told her that let’s say worst case, he never gets there mentally and never gets up to the level of high-functioning. Well, if we can at least feed him right and that takes away his pain, that would be a huge plus. One thing we hear people say a lot is, “well, as long as he’s happy … ” and there’s merit to that. I’m not still hanging on to the illusion that he can’t enjoy his life if he doesn’t marry a typical woman and have children. But he’s not at all happy when he’s in pain, which is every day.

He’ll always fight autism, so we’ll always fight autism. Hopefully this information helps us help him.

That’s all I have for today … have a great day![subscribe2]

Filed Under: Uncategorized

Operation Jack Marathon Discount Code: 1IN50

October 23, 2013 by operationjack Leave a Comment

On Monday, I posted that we’d run a discount code for the Operation Jack Marathon. I used a picture of my son Jack (the Jack in Operation Jack Marathon) to advertise that. Back on his first day of school, he held a sign and if you know your Jay-Z, it was pretty funny. So, I went with the same concept. I’m biased, but I think Jack is cute and it was a fun little thing to do.

Here’s the pic I ran:

Ahh, I love it when Jack is happy ...
I love this little guy!

I loved the pic and went with it. I’d been planning on running a discount with a picture with him for fun for about a week. I wasn’t sure what the code would be. I was thinking IMWITHJACK or OJ2013 … I wasn’t sure. But then for whatever reason, I decided it would be 1IN50. Because that’s why the race exists in the first place. 1 in 50 kids have autism nowadays and it needs to stop. I like to say, “do what you do best and let everybody else do the rest” … my way of fighting autism is through running. And because of Jack, himself a 1 in 50, there’s an Operation Jack, which led to the Operation Jack Marathon.

Operation Jack: My mission to make sure Jack is more than a statistic.
Operation Jack: My mission to make sure Jack is more than a statistic.

I had no idea that I’d get all serious in announcing a discount code. But I guess it just happened that way. 1IN50 — use CAPS with the IN. Use the code through this Sunday, October 27, to save $10 off the half or the full. That’ll drop your price to just $55 for the half and $65 for the full. For a race that runs along the ocean, has mountain views, is flat and fast, boasts 60-degree temps in late December, offers a custom 4-inch die cast medal and benefits a great cause, you just can’t do better than that!

I’ll definitely be at the race. I hope to see you out there! CLICK HERE to register! Have a great Wednesday![subscribe2]

Filed Under: Autism, Operation Jack Marathon

I'm Gonna (Try To) Be Mr. Mom

October 21, 2013 by operationjack 1 Comment

I’m just posting here so that there’s a public record. I’m concerned for my safety and I figure that if something happens to me and nobody ever sees or hears from me again, the police will come look at my blog and know who to investigate:

My kids.

My wife is going out of town — heck, she’s going out of time zone — for a few days this week. She’s going to visit her sister and I’m watching the kids. All three of them. All three of them. There’s three of them. They’re gonna kill me.

I’m happy for Tiff. This is going to be a good trip for her and her sister and there’s three of these little people running around my house. I know that normally, taking care of the kids is not a big deal and it’s just something that dads do. But as you know if you’ve ever been here before, I have a severely autistic son named Jack (quick plug: Operation Jack), and he’s got a heck of a routine. I have four typed pages on the refrigerator on the step-by-steps for him. I have huge respect for the job Tiff does with Jack every day — she has it down to a science and does an amazing job. I’m really going to have huge respect for her after going through about four days of this routine.

How to take care of Jack.
How to take care of Jack.

Then there’s the other two kids. To say I’m intimidated by this is an understatement. I know, it sounds stupid. A dad should be able to take care of his three kids, especially if he’s been a dad for 12 years. Really, it’s just Jack. With everything he’s been through over the past year, he’s really become dependent on Tiff and they have his incredibly detailed daily routine down pat. We both do a lot of things to keep our family going and she definitely handles taking care of Jack.

It will be pretty challenging for me and I’m nervous about this and even though she hasn’t even left yet, I can’t wait for her to get back. It will be nice, though, to spend more time than I normally do with Jack. Ben and Ava will be fine. We’ll all (probably) survive. Well, maybe.

Operation Jack Stuff

OK, I haven’t mentioned this for a while, but I’m trying to recruit people to run races next year and pick charities for me to give money to.

Elevator pitch: If you raise money for an autism-related charity (your choice!) equal to the cost of your race entry, I’ll cover your race entry. If you’d rather just donate money to an autism-related charity equal to the cost of your race entry, I’ll cover your race entry. I will cover your choice of a race entry or a donation to charity and either way, there’s no cost to you. And I’m going to throw in a custom Operation Jack shirt and medal as a bonus. This is my way of getting people involved and letting you pick what charities the Operation Jack Autism Foundation will donate to. Click here for the details. No risk, no cost, help me fill up my list!

Operation Jack Marathon Stuff

We’re going to run a discount code this Wednesday through Sunday. Come back here or check out the Operation Jack Marathon Facebook page for the discount code!

Ahh, I love it when Jack is happy ...
Ahh, I love it when Jack is happy and we can take a picture …

Ok, that’s all I have for today … if I have time to write a blog tonight, I have some rad pics from a trip to an amusement park on Saturday. Have a great Monday![subscribe2]

Filed Under: Family, Jack, Random

My Son Is Not Going To Be A Marathoner

October 16, 2013 by operationjack 1 Comment

I’m a 106-time marathoner, so I’m not inherently opposed to using my feet to get from A to B. Apparently, it’s a different story for my kids. Here’s a text from my son to my wife last week:

text

He was at the bus stop. Tiff went to pick him up and she hit the trip meter just for the heck of it.

odometer

There’s your round trip, 1/10 of a mile, less than a football field one-way. It was raining, but seriously! Oh well, I love him anyways. Have a great Wednesday!

(Quick plugs: Operation Jack | Operation Jack Marathon)[subscribe2]

Filed Under: Uncategorized

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