Operation Jack

Fighting autism, one mile at a time.

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This Video Shows Why We Moved To Pennsylvania

October 7, 2013 by operationjack 3 Comments

I’m going to be short and sweet with my blog today because if you’re willing to give me two minutes of your time by coming here, I’d rather you spend it watching the video instead of reading something I write. As I’ve documented here many times over the past half-year, we moved from Colorado to Pennsylvania because the folks at the school district in Boulder fought pretty hard to keep our severely autistic son Jack out of school.

Rather than continue to fight since we were in the right, we decided to just move forward and do what was best for Jack and our other two kids. We researched, picked Pennsylvania, and here we are. Jack was out of school all of last year and really regressed, but he started school a month ago and is doing really well. He’s obviously way, way behind, but he’s at least headed in the right direction again. Yesterday, he was bored watching something on TV and wanted Tiff to work with him on his flash cards. Here’s the video:

This is miles ahead of where he was a few months ago. He’s moving in the right direction and he deserves that. That’s why we moved to Pennsylvania.

Quick plugs: About Operation Jack | Operation Jack Marathon

Have a great Monday![subscribe2]

Filed Under: Autism, Jack

Three Things Friday: Can I Pay For Your Marathon Entry?

September 20, 2013 by operationjack Leave a Comment

Three Things Friday … the whole Three Things Thursday rolls off the tongue easier, but it’s not Thursday. So there’s that. Three quick things and then I’ll send you on your weekend (as if you’re waiting on me for that … but anyways) …

1. I started Operation Jack by running 61 marathons in 52 weeks in 2010. I can’t do that again (well I could, but it would require a corporate sponsorship I’m not going to get). But I still want to get people to run for the cause. So I have what I think is the easiest way to get you to do that: Raise $100 (yes, that’s one-hundred, that’s all) and I’ll cover a marathon entry for you that costs up to $100. Raise $125 for an entry up to $125 or $150 up to $150. The money you raise will go to the autism-related charity of your choice. Basically, I like to raise money to give it out and I want to use my 2014 budget to spread it around all over the place to the charities you pick. Oh, and I’m going to send you an Operation Jack shirt and medal to supplement what you get at your race.

It’s pretty easy, risk-free and it is as much of a no-brainer as it sounds. You could just “raise” the money with your own donation, which would basically be the same cost as your race entry anyways. Take a look at the details. If you’re interested, email me at sam@operationjack.org!

2. I haven’t talked about it much and I’ll probably write up a post very soon. But a lot of you know that we moved out here to Pennsylvania for a better school situation for Jack and he finally started school on September 3. Well three weeks in and it’s going very well. The school is great, the staff is great and Jack’s doing well. I’ve met his teacher and the assistant who’s dedicated to him and so far it confirms everything I thought about why we moved here.

3. Kansas City over the Eagles last night … one bad thing about the East Coast is weeknight football is super, super late now. But it’s gonna be a lot of fun being a Chiefs fan at work in Philly today!

This is my coffee mug at work.
This is my coffee mug at work.

That’s all … that’s three … have a good weekend![subscribe2]

Filed Under: Autism, Causes/Fundraising, Jack, Random

10 Productive Years

September 16, 2013 by operationjack 1 Comment

I love writing when I have have no clue what I’m going to write about. Today is one of those days. It’s Jack’s 10th birthday and all I know is I’m going to write a birthday post but I’m not sure what to say. I guess I’ll start with my standard preface and say that if you’ve never been here, click here to see what Operation Jack is about. My son Jack is the “Jack” in Operation Jack. He was born a decade ago and he’s severely autistic, still in diapers, still barely verbal, still having meltdowns and exhibiting self-injurious behaviors on a daily basis.

I’ve been writing a lot of “woe is me” and “woe is Jack” posts lately, but I’m not going to do that today. It’s not going to do any good. And I just don’t feel like it’s necessary. While I feel like he was robbed of his first 10 years, my wife Tiffany and I have fought hard to position him well for his next 10 years. We’ve learned a lot during the eight years we’ve been in this circle and we relocated 3,000 miles from our roots in California (after a one-year accidental detour in Colorado) to place him in a great school in Pennsylvania and surround ourselves with great people in a strong, local autism community. This next decade will be a LOT better that the past one.

Tiff and Jack yesterday during a little party we had with the neighborhood kids.
Tiff and Jack yesterday during a little party we had with the neighborhood kids.

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Filed Under: Autism, Jack

FINALLY, Jack Is In School!

September 3, 2013 by operationjack 9 Comments

If you’ve been here at all before, you know my son Jack is severely autistic. He’ll be 10 in less than two weeks and has very minimal speech, he’s not potty trained, has self-injurious behaviors — basically, the works. We live in Pennsylvania, but we moved here from Colorado after living through a terrible nightmare. Jack hasn’t had a school to go to since May 2012, but FINALLY, today he’s going to school!

Now technically, he did have a school to go to. Our school district there “offered” a school that was unsafe — the playground was 86 feet from the parking lot and it was unfenced. Jack is silent and likes to elope. Give him the slightest window and he’ll dash without fear of consequence. With less than a two-second distraction by whomever is supervising him, he would have a big enough head start that it would be impossible for that person to catch him before he reached the parking lot if that was the direction he was headed.

Their safety plan was, “Don’t worry, nothing will happen.” But those same people probably make sure their kids wear seat belts. Because accidents DO happen. I heard several reports of autistic kids eloping and dying this summer. I’m not going to let Jack be one of them.

In the words of Jay-Z, ...
Jack this morning. In the words of Jay-Z, …

He has a handicap parking placard because doctors know he’s a danger to himself and he should not spend extended time in parking lots. The school right down the street from our house was safe with a fenced-in playground, but the principal wouldn’t allow him back in. We suspected, based on numerous meetings and comments, that it was because the special ed teacher didn’t want to put forth the effort to legitimately teach Jack. The official reason the principal refused to allow us to bring Jack to her school is because she said that even though we repeatedly asked to bring him there, she said we didn’t want to bring him there. I know, doesn’t make sense.

They knew we wouldn’t bring him to the unsafe school, so by keeping him assigned there, nobody in the district had to deal with him. In their system, where it’s painfully obvious that the schools are there for the teachers to teach as long as the students don’t get in the way, he was just a pain in their ass. We thought about going to court, but “winning” would have been more expensive than relocation. And what was the prize? A teacher who didn’t want to teach my kid because he’s challenging?

So we did some research and relocated to Pennsylvania. I found a job immediately and moved here four months ahead of my wife and kids. The other two finished up the school year and then all four of them spent seven weeks in California while I looked for a house out here.

Because we made the decision to put Jack’s safety ahead of his education, he’s regressed quite a bit over the past 15+ months. He’s developed serious separation issues with my wife, because they’ve basically been glued to each other’s hip since May 2012. This has really wrecked him, which is a shame, because autism had already done a pretty bad number on him. It’s done a number on my wife, too. She’s had a miserable non-existence for more than a year now.

But we’ve been counting down the days to September 3 since March and finally it’s here. Finally, Jack and Tiff are going to get their lives back on track. It’s more important that Jack gets rolling again, because he’s a disabled child and time is ticking and this is a critical time period that will determine the quality of his adult life. However, I’m also excited that my wife is on the verge of finding happiness again. We’ve made sacrifices as parents because that’s what parents do, but we’re optimistic that there will come a time that we don’t have to sacrifice our happiness. So far, parenthood has been an experience where we scratch our heads and think, “people actually enjoy this?” You do what you have to do, though. You fight for your kids and you protect them.

So today, Jack goes back to school. We’ve met his teacher (and know plenty about her experience with children with similar levels of autism) and they clicked right away. He’s spent time inside the school and on the playground and seems very comfortable. He’s about to get his life back. Tiff is about to get her life back. My family is about to get back into a productive routine, which is something we haven’t had for a long, long time.

I know a lot of you have followed along as we’ve gone through nothing but miserable experiences for the better part of a year. I know a lot of you have been praying for us and rooting for us and hoping we turn the corner. Well, the day we’ve been looking forward to is today. Finally. I’ll try to keep you posted with more good news!

Have a great Tuesday, y’all. I’m pretty sure I will!

(Side note, if you’ve never been here before, check out Operation Jack and the Operation Jack Marathon!)

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Filed Under: Family, Jack

I'm In Denial

August 1, 2013 by operationjack 2 Comments

I’m an autism dad and I’ve known that I’ve been in this unfortunate fraternity for about eight years now. In my circles and extended circles, I’m pretty much known as an autism dad and I can’t even begin to count the number of times somebody has contacted me and asked for advice. One of the first things I always say is don’t live in denial. Telling yourself that your kid doesn’t have autism might make you feel better, but delaying intervention will only hurt your child in the long term. Early intervention, don’t live in denial — that’s my standard advice.

In a reverse kind of way, eight years into this I think I’m living in denial. I still think it’s going to get better for my son Jack. I keep telling myself that. I look at him and think that someday I’m going to have a conversation with him and stop buying diapers for him. But when I step back from my situation and try to look at things objectively, I think I’m trying to convince myself of something that isn’t true. [Read more…]

Filed Under: Autism, Jack

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